TAKE
ACTION
#MEAction is dedicated to taking action in areas that affect people with myalgic encephalomyelitis (ME), Long COVID, as well as other chronic illnesses and disabilities. We are closely monitoring current policy changes that could drastically impact the lives of millions of people in our communities.
Together, we must come together to fight to protect support services vital to our communities, like Medicaid and Telehealth. We are joining the fight to protect basic scientific integrity, and will continue our fight for research funding for ME.
Take Action now by clicking on the links below!
We plan to keep this page up-to-date and current, though many new actions are arising each day. If you have something you’d like to bring to our attention, please email info@meaction.net.
PROTECTING INFRASTRUCTURE AND SUPPORT SERVICES
Medicaid is life saving support for people with chronic illnesses and disabilities. We must take action to ensure that Medicaid is not cut!
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Telehealth is set to expire March 31st, 2025! Take action now to help protect telehealth for the ME and Long COVID communities!
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FIGHT FOR SCIENCE AND RESEARCH
Research Roadmap
#MEAction will continue to advocate for the ME/CFS Research Roadmap to be funded. The new director of NIH has still not been confirmed, but after this confirmation, we will update you on next steps and actions to take.
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Fight For Science
With the new administration making major cuts to critical federal agencies that impact the ability for our government to research, monitor and inform about ME, Long COVID and related diseases, now is the time to fight for science integrity and informed progress.
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Join a Stand Up for Science Protest: If you join, we recommend wearing your MEAction shirt and taking photos for social media! If you protest, please see our toolkit, for tips for people with ME. We will be developing a script to call elected officials about protecting science integrity. Check back soon.
PROTECTING VULNERABLE POPULATIONS
504 Accommodations
Take action to protect 504 accommodations: What is Section 504: “Section 504 is part of a law that is more than 50 years old that protects people with disabilities. This law says that anyone who receives money from the federal government cannot exclude or discriminate against people with disabilities. Discrimination means treating people unfairly.
A disability defined by Section 504 is a “physical or mental impairment which substantially limits one or more major life activities.” A “major life activity” includes walking, seeing, hearing, speaking, breathing, learning, working, and eating.
The federal government updates Section 504 rules over time. Thousands of advocates wrote letters to the federal government about what to include in a new update. In 2024, the federal government released an update to the Section 504 rules. States are challenging this update and the legal status of Section 504.