TAKE
ACTION
#MEAction is dedicated to taking action in places that affect people with ME, Long COVID, as well as other chronic illnesses and disabilities. We are keeping our eye on current policy changes that could change the lives of millions of people. Together, we can come together to uphold basic protections, and fight for change.
Take Action by clicking on the links below.
We will aim to keep this page up-to-date and current, though many new actions are arising each day. If you have something you’d like to bring to our attention, please email info@meaction.net.
PROTECTING INFRASTRUCTURE AND SUPPORT SERVICES
Medicaid is life saving support for people with chronic illnesses and disabilities. We must take action to ensure that Medicaid is not cut!
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Medicaid is life saving support for people with chronic illnesses and disabilities. We must take action to ensure that Medicaid is not cut!
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FIGHT FOR SCIENCE AND RESEARCH
Research Roadmap
#MEAction will continue to advocate for the ME/CFS Research Roadmap to be funded. The new director of NIH has still not been confirmed, but after this confirmation, we will update you on next steps and actions to take.
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Fight For Science
With major changes happening to our federal agencies, this is the time to fight for science integrity.
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Join A Protest: If you join, we recommend wearing your MEAction shirt and taking photos for social media!
If you protest, please see our toolkit.
We will be developing a script to call elected officials about protecting science integrity. Check back soon.
PROTECTING VULNERABLE POPULATIONS
504 Accommodations
Take action to protect 504 accommodations: What is Section 504: “Section 504 is part of a law that is more than 50 years old that protects people with disabilities. This law says that anyone who receives money from the federal government cannot exclude or discriminate against people with disabilities. Discrimination means treating people unfairly.
A disability defined by Section 504 is a “physical or mental impairment which substantially limits one or more major life activities.” A “major life activity” includes walking, seeing, hearing, speaking, breathing, learning, working, and eating.
The federal government updates Section 504 rules over time. Thousands of advocates wrote letters to the federal government about what to include in a new update. In 2024, the federal government released an update to the Section 504 rules. States are challenging this update and the legal status of Section 504.